Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: 6 October 2022

• An estimated 2.3 million people living in private households in the UK (3.5% of the population) were experiencing self-reported long COVID (symptoms continuing for more than four weeks after the first confirmed or suspected coronavirus (COVID-19) infection that were not explained by something else) as of 3 September 2022; these estimates are not fully comparable with those in previous bulletins due to changes in data collection methods.

• Of people with self-reported long COVID, 363,000 (16%) first had (or suspected they had) COVID-19 less than 12 weeks previously, 1.8 million people (80%) at least 12 weeks previously, 1.1 million (46%) at least one year previously, and 514,000 (22%) at least two years previously.

• Of people with self-reported long COVID, 672,000 (29%) first had (or suspected they had) COVID-19 before Alpha became the main variant; this figure was 259,000 (11%) in the Alpha period, 425,000 (19%) in the Delta period, and 832,000 (36%) in the Omicron period.

• Long COVID symptoms adversely affected the day-to-day activities of 1.6 million people (72% of those with self-reported long COVID), with 342,000 (15%) reporting that their ability to undertake their day-to-day activities had been “limited a lot”.

• Fatigue continued to be the most common symptom reported as part of individuals’ experience of long COVID (69% of those with self-reported long COVID), followed by difficulty concentrating (45%), shortness of breath (42%), and muscle ache (40%).

• As a proportion of the UK population, the prevalence of self-reported long COVID was greatest in people aged 35 to 69 years, females, people living in more deprived areas, those working in social care, those aged 16 years or over who were not working and not looking for work, and those with another activity-limiting health condition or disability.

• The estimates presented in this analysis relate to self-reported long COVID, as experienced by study participants who responded to a representative survey, rather than clinically diagnosed ongoing symptomatic COVID-19 or post-COVID-19 syndrome in the full population.

If you are worried about new or ongoing symptoms four or more weeks after having COVID-19, there are resources available to help. See Long-term effects of coronavirus (NHS) and Your COVID Recovery (NHS), which can help you to understand what has happened and what you might expect as part of your recovery. The time it takes to recover from COVID-19 is different for everyone, and the length of your recovery is not necessarily related to the severity of your initial illness or whether you were in hospital.

This analysis was based on 212,341 responses to our Coronavirus (COVID-19) Infection Survey (CIS) collected over the four-week period ending 3 September 2022, weighted to represent people aged two years and over living in private households in the UK.

All participants provided responses remotely during the current four-week period. The estimates reported in last month’s Prevalence of ongoing symptoms following COVID-19 infection in the UK bulletin were based on a mixture of remote and face-to-face data collection, while those in earlier bulletins were based entirely on face-to-face responses. These estimates are therefore not fully comparable with those in previous bulletins.

Self-reported long COVID was defined as symptoms persisting for more than four weeks after the first suspected COVID-19 infection that were not explained by something else. Parents and carers answered the survey questions on behalf of children aged under 12 years.

Date of first (suspected) COVID-19 infection was taken to be the earliest of:

• the date of first positive test for COVID-19 during study follow-up
• the date of first self-reported positive test for COVID-19 outside of study follow-up
• the date of first suspected COVID-19 infection, as reported by the participant

Those with an unknown date of first (suspected) COVID-19 infection are in the estimates for “any duration” but not in duration-specific estimates. All estimates by duration are calculated from the date of the first (suspected) COVID-19 infection, and reinfections are not taken into consideration.

The survey questions relating to self-reported long COVID can be found in Section F of the enrolment and Section D of the follow-up CIS questionnaires.

Strengths

This analysis is based on data from the Coronavirus (COVID-19) Infection Survey (CIS), a large study that provides a key indicator of national COVID-19 positivity. CIS responses are weighted to represent the UK population in private households according to age group, sex, and region. The sampling weights are adjusted to account for non-response to the survey over the reference period.

All participants had the opportunity to answer the survey questions relating to long COVID, regardless of whether they had previously tested positive for COVID-19.

Limitations

Like all household surveys, not all sampled households invited to participate in the study actually enrol, and individuals may drop out over time (see Tables 2a to 2f of the technical dataset accompanying the latest Coronavirus (COVID-19) Infection Survey statistical bulletin for survey response rates). Our estimates are weighted to account for non-response. However, bias may be introduced if non-response is related to long COVID, for example participants being more willing, or less able, to continue in the study because of their symptoms.

Long COVID status was self-reported by study participants and so misclassification is possible. For example, some participants may be experiencing symptoms because of a health condition unrelated to COVID-19 infection. Others who do have symptoms caused by COVID-19 may not describe themselves as experiencing long COVID (for example, because of lack of awareness of the term or not knowing they were initially infected with COVID-19).