COVID-19 Treatments and Behaviours Study (CTB)

This study aims to understand views and behaviours of people who may be suitable for coronavirus (COVID-19) treatments. We are interested in finding out more about how the pandemic impacted you, your well-being, your opinions on the guidance and your views on the effectiveness of the coronavirus treatments.

You have the unique opportunity to tell us about your experiences during the coronavirus (COVID-19) pandemic and your views on coronavirus treatments and vaccines. Your responses will provide us with information not available from any other sources. You will be helping scientific advisors and government departments shape future policies. Do not miss your chance to have your say.

The study will cover a range of topics, including:

• information about you
• how the coronavirus (COVID-19) pandemic has impacted your health and well-being
• your views and eligibility of the coronavirus treatments

The questions we ask can be based on both facts and opinions. You do not need to know the government guidance to take part.

You do not need any specialist knowledge to take part. There are no right or wrong answers – your honest responses are vital for us to produce reliable statistics.

We respect your right to a private life – the information you provide in this study will not be used to identify you in any way.

Your response is extremely important. It helps make sure your voice counts in producing reliable statistics for decision-making. For us to get an accurate picture of people’s views and experiences, we need to talk to people from all walks of life.

Taking part is voluntary. If you do not want to answer some or any of the questions, you do not have to. Please answer as many questions as you can, to ensure that your experiences and circumstances are counted.

Your personal information will remain confidential.

The details you provide will be combined with those of everyone else taking part. Any data we publish will never identify you.

We do not sell on your data, and you will not receive junk mail or marketing calls as a result of taking part in the study.

If you want to know more, please see the section about our commitment to protecting your data.

You should have received a text inviting you to take part in the study.

An interviewer from the Office for National Statistics (ONS) will contact you from the telephone number 02392 958174 to carry out the interview over the phone, or to find a convenient time to do so.

We design our studies with you in mind and keep them as short as possible. We only collect the information we need to better understand your experiences. Your response is really important to us.

How to get an invite if you do not receive one

Individuals are chosen at random to take part in this study and cannot be replaced with others. To ensure the study is valid, only those selected at random can take part.

This study is being carried out by the Office for National Statistics (ONS) for the UK Health Security Agency (UKHSA). The ONS are the country's largest producer of statistics.

We are:

• independent, unbiased and impartial: we are separate from other organisations and do not allow anything to influence the statistics we publish
• the only organisation that produces official statistics as a primary role: we have no additional interest in the information we collect
• only interested in society and not you as an individual: statistics represent groups of people; we remove your personal details as we are not interested in singling you out

We are not:

• a commercial or market research organisation: we do not work for profit and will not try to sell you anything
• associated with any political parties: we produce official statistics, no matter who the Prime Minister or political party in government is
• going to sell on your data under any circumstances: we value your involvement in our studies and do not profit from your data; you will not receive any “junk mail” because of taking part
• monitoring you, as the data you give are only used for producing statistics: we will not use your information to contact you about other matters such as your tax, income, or benefits, and we will not provide your information to anyone else for them to do so either

Read more about what we do at the ONS.

To understand people’s views about official guidance for people who are considered immunocompromised, we need to talk to people like you.

You have previously been identified as “Clinically Extremely Vulnerable” and have been selected to take part from a list of names and addresses from NHS Digital. The Office for National Statistics (ONS) has been given permission to contact you to invite you to participate in the COVID-19 Treatments and Behaviours Study to ensure that government policies are informed. We will not use your contact details for any other purposes.

It is not possible to ask everyone to take part in our study; instead, we have invited a sample of individuals. We cannot ask another individual to take your place as this would affect how representative our study is.

The results from this study will be used by the UK Health Security Agency (UKHSA) to better understand the opinions of those considered immunocompromised on coronavirus (COVID-19) guidance and their experiences of coronavirus treatments during the pandemic. This will be used by scientific advisors to help inform future government decisions.

How we will use the information you provide

Your personal information will remain confidential. The details you provide will be combined with those of everyone else taking part so we can produce statistics. Any data we publish will never identify you.

The Office for National Statistics (ONS) and the UK Health Security Agency (UKHSA) will use your data for statistical purposes only. UKHSA may link the data collected in this study to other datasets. UKHSA will receive the data produced from this study and may share the information with relevant public health bodies, for example, Public Health England who will also keep the information confidential. We will follow the Code of Practice for Statistics.

All personal data will be deleted once they are no longer required to produce statistics. We do not sell on your data, and you will not receive junk mail or marketing calls because of taking part in one of our studies.

The precautions for data protection and confidentiality we have taken

The ONS adheres to the Code of Practice for Statistics, the Data Protection Act 2018 and the General Data Protection Regulation(GDPR) and processes all personal information with respect, keeping it secure and confidential. Any personal data collected are processed in systems that have been accredited by the ONS, designed to uphold the security of the data and that are subject to regular assessment.

We ensure your personal information is held securely

We take our responsibilities to keep your personal information secure very seriously. As such, we take every reasonable precaution to ensure your information is protected from loss, theft or misuse. These precautions include appropriate physical security of our offices, controlled access to computer systems, and use of secure, encrypted internet connections when collecting personal information.

You can read about the commitments the Office for National Statistics (ONS) makes to those taking part in its studies in our ONS respondent charter for surveys of households and individuals.

If you have a question about how we process your personal data or want to find out more about your rights under data protection legislation, please see our data protection page.

At the ONS, we take seriously our responsibility to the public. It is our policy that we will tell the appropriate authority if we believe there is a serious risk to someone's safety.

We would appreciate your suggestions on how we can improve any of our studies. It would also be great to hear from you if you are happy with the service you have received. You can email us at Covid.Insights.Study@ons.gov.uk.

For more information on the coronavirus (COVID-19) treatments you may be suitable for please visit the NHS website.

For more information on the guidance for people whose immune system means they are at higher risk please visit the government support website.

For more help and support regarding the coronavirus pandemic please visit the government coronavirus website. 

For advice and practical steps that you can take to support your well-being and manage your mental health, please visit the Every Mind Matters website.

If you would need support in another language, please call for free on 0800 298 5313 to request that.

If you have any queries or concerns about the study, please phone us for free on 0800 298 5313 or email us at Covid.Insights.Study@ons.gov.uk

Useful links

UK Health Security Agency (UKHSA)

Public Health England